Name: 1 Very Palpable Hit (1verypalpablehit)
Member Since: July 10, 2011
Instant messaging: aim:1verypalpablehit
Location: Ontario, Canada
Birthday: June 15, 2011
Profile: Cancer Survivor
Type of Cancer: Ovarian Cancer
Medical Term for the Type of Cancer: high-grade serous ovarian adenocarcinoma (sub-type of epithelial)
Diagnosis Date: June 28, 2011
Stage of Cancer: Stage 4
Tumor Size: over 6.1
Grade of Tumor: Grade 3
Lymph Node Involvement: Yes
Surgery: Oophorectomy, Hysterectomy, Lymph Node Removal, Omentectomy
Chemotherapy: Carboplatin (Paraplatin), Taxol (Paclitaxel)
What I Hate Most About Cancer: The losses of my future and a good deal of my present.
What I Have Learned From Cancer: You are as much about what you don't do as what you do.
Things My Supporters Can Do To Help: You all do it. :)
Alternative Cancer Treatment: Complementary therapies of massage, acupuncture, diet, meditation, yoga, tai chi, prayer, and naturopathic medicine.
Metastasized? Where?: supraclavicular (aka scalene) lymph nodes, both right and left; pelvic, abdominal lymph nodes; fallopian tube. Brain 2016
Clinical Trials: They all want my tissue.
Gift Friends or Family Could Give You: The gift of your presence is especially important.
Tips for others on how to deal with the physical side effects of chemo/cancer: Seek out all possible solutions.
Tips for others on how to deal with the mental struggles of chemo/cancer: Accept all the love and support that comes your way and marvel.
End of Treatment Date: November 23, 2011
NED Date: April 11, 2012
Ovarian Cancer symptoms: I found a lump in my neck above my collarbone, and I had been having shortness of breath when speaking and exercising. Also tightness of upper chest when exercising.
Surgery Description, Dates & Side Effects: TAHBSO and section of supraclavicular lymph node on July 25th, 2011; emergency flap craniotomy (brain surgery) Jan 30, 2016
Chemotherapy Description, Dates & Side Effects: Combined carboplatin and taxol, both administered systemically by IV started August 10, 2011, with last cycle administered November 23, 2011. Side effects included: nausea that was only gotten under control after the second administration using about 5 drugs; intense fatigue; muscle and joint pains that were reduced with tylenol and later greatly reduced with gabopentin; intense neuropathy in hands and feet, but even lips and chin until the gabopentin took the edge off that, too. Neuropathy still intense in first week of every cycle. Other side effects included intense fatigue, weakness, vision problems on two occasions (blindness in one eye when reading lying on side), severe constipation, and cognitive effects (short term memory dysfunction, inability to solve puzzles, inability to multitask or withstand multiple stimuli at once). There's talk of giving me a PARP-inhibitor for maintenance therapy in 2012.
Constipation for 9 months! No, wait. Make that FOREVER! Seriously. Til my dying day.
Radiation or Proton Therapy Description, Dates & Side Effects: TBD, Feb 2016 - Brain
Fundraising Description: Ovarian Cancer Walk of Hope